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WHEN YOU
NEED A
FRIEND
Writer's Note:
I first crossed paths with Kenny Kramer
in the early 70's on a volleyball court in the Coconut Grove Apartment complex where we both lived. He was tall and thin with the biggest afro I had ever seen on a white man. There was an onshore breeze from Biscayne Bay, and I half expected the wind to lift him up and float him away through the palm trees like a hippy Mary Poppins. Coconut Grove in those days was the Haight Asbury of the east coast. we enjoyed all it had to offer to the fullest hedonistic maximum. Eventually
the Grove Hill
CHECK IT OUT
AUTHOR'S NOTE: As I am sure is obvious to the reader by now, Kenny and I share an irreverent, unconventional, at times cynical, sense of humour. Nothing is exempt, nothing verboten, nothing censored... even incurable disease. An Instant Message Conversation with the Original Kramer Thoughts on celebrity and disease
Kramer:
Hey Tom. What'appening? Kramer: Well, Michael J. Fox has it too. Haven't you seen the coverage? It's been all over the news and TV. Tom: What's that got to do with me for Christ's sake? Kramer: Well, he's a big celebrity. Tom: Bigger even than you? Kramer: I'll ignore that. Tom: So? What's celebrity got to do with it?
Kramer: So they'll find a cure!
(Another Pause) Tom: Kenny, I gotta sign off now. I'm gonna go take a drug overdose, or maybe slit my wrists. Kramer: Okay man. Catch you later.
People sometimes ask what it is like to have Parkinson's. Here is the best answer I've come across.... "The body starts to tremble uncontrollably, limbs stiffen up like boards, movements are painfully slow and jerky, speech is slurred, maintaining balance is impossible and even the simplest task becomes a living hell. This is Parkinson's Disease. Currently, there's no evidence to say why it occurs and who will be its next victim. And there's no cure. The only hope is rehabilitation and research for a cure.
I had not planned to do this. to keep a diary about struggling to live with this disease. Plenty of other victims or family members and /or carers have already done that. Most of them are poorly written by amateurs, soppy emotional self--serving diatribes about their 'courageous battle’. The same term is often used in the obits. 'So and so died after a courageous battle with parkinsonism.'
Stop right there. Battle? What battle? That is bullshit. There is no battle. Parkinson's whips your ass, kicks you when you are down, and gives you a thorough thrashing just short of killing you. I know about battles. I used to throw rednecks out of the oldest and one of the toughest bars in Florida. No battle, just a good old southern style stomping. All the aces in the deck are in the cards held by the devil. Things friends have said to me.... "Oh Tom, I'll pray for you". 'Gee thanks' I thought. What the hell good is that going to do. She probably voted for George Bush ' I'm agnostic, Be sure and burn some incense. I'm an old hippy and Buddhism is the closest I get to believing in an afterlife. I want to come back as grasshopper in a kung fu movie. *** " Tom, you look great. I would not have known you had the disease." "Sorry to disappoint you." I replied. " Stick around long enough and I promise to drool on you when I reach that stage." *** "Tom, you know Parkinson's won't kill you." said a friend who is a gp. "No" I replied, " It just makes me wish I was dead." (sorry gotta stop there. I am going into hospital for back surgery and will continue when I am able .) I MASTHEAD PHOTO NOTES he blue cat scan is my brain. The white area surrounded by red shows where I am loosing dopamine producing nerve cells. That's not good. Sometimes I feel like one of those other bunnies in the Eveready battery commercial. I have no way of knowing how far or how long I can keep going. The other photo is of the brain collection at Cornell University. In the early 1900's a professor there did a study on brain size correlation to intelligence. It was really intended to prove a racist theory that white people were smarter than other races because their brains were bigger. After years of measuring brains, the professor conceded his theory was false. Incidentally, the biggest brain in the collection was that of a mass murderer. |
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